She Came. She Saw. She Loved. Tatum Hopper’s Family Celebrates Her Life
Blog Two months after Tatum Hopper passed away at age 24 from vasculitis, I greeted her parents, Jon and Angie, on Zoom. I had an inkling of their daughter’s spirit. In her obituary, Tatum is likened to “pure sunshine. The kind of sunshine you can bask in…and feel like God is smiling down on you. […]
“Fatherhood is My Driving Force.” Greg Patterson’s Vasculitis Story
Blog Greg Patterson, who describes himself as a “weekend warrior long-distance runner,” was in the middle of the Peachtree 10K Road Race in Atlanta, Georgia, last July when he and his two daughters (who were running with him) stopped momentarily to walk. They had been running the race together for about 10 years and knew […]
Pei-Yu Chen, BS, MS, PhD, Awarded Two-Year Grant Through VF’s Young Investigator’s Award Program
Blog Pei-Yu Chen, BS, MS, PhD, Senior Research Scientist, Cardiovascular Medicine, at Yale University, has been awarded a two-year grant through the Vasculitis Foundation’s Young Investigator’s Award Program for her study, “siRNA Nanoparticle Targeting Endothelial Cell TGFβ Signaling Against ANCA-Vasculitis.” The aim is to reveal how large a role TGFβ-mediated EndMT plays as drivers of […]
David Massicotte-Azarniouch, MD, Awarded Two-Year Grant Through VF’s Young Investigator’s Award Program
Blog David Massicotte-Azarniouch, MD, Assistant Professor at the University of Ottawa and Associate Scientist at the Ottawa Hospital Research Institute in Ontario, Canada, has been awarded a two-year grant through the Vasculitis Foundation’s Young Investigator’s Award Program. The aim of his study, “Steroid Minimization in ANCA-Associated Vasculitis For Safe Effective Treatment – the SAFE-T project,” […]
Brett Hack Vasculitis Charities: Raising Awareness of This Rare Disease
Blog In 2012 Terry Hack’s son, Brett, had a grand mal seizure that came out of the blue. Several tests were done but there was no diagnosis. He was placed on anti-seizure medication for over a year, and 14 months after his first seizure he developed a severe headache, sinus infection and numbness in his […]
Florida Kidney Physicians Glomerulonephritis Center of Excellence Now Accepting Patients
Blog Vasculitis patients are complex. Different forms of the disease may share similar symptoms and treatment courses; however, each disease is distinct. This requires dedicated specialists who will go the extra mile, working cohesively for their patients. The specialists at the Florida Kidney Physicians Glomerulonephritis Center of Excellence in Boca Raton provide comprehensive care for […]
University of Michigan’s Vasculitis Program: Hoping to Impact Individual Patients and the Approach to the Diseases
Blog The University of Michigan (U-M) Vasculitis Program began in September 2021 with a soft launch. “We started simply by instituting a dedicated vasculitis clinic and have been moving forward step by step,” said Ora Singer, MD, MS, Director of U-M’s Vasculitis Program. Both Dr. Singer and her colleague Julia Ford, MD, the Associate Program […]
MICHAEL AGATHIS | VF Patient Hero 2022
Blog Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo. 2022 Vasculitis Foundation Patient Hero, Michael Agathis was diagnosed with Granulomatosis withpolyangiitis (GPA) in 2013. “Strength comes from true belief and faith in God and the strength to live from my wife and daughters.” About the […]
Mom Climbs Highest Mountain in Africa in Memory of Her Extraordinary Daughter
Blog Update: Jo has made it to the top of Mt. Kilimanjaro! The climb was by far the hardest thing she’s ever had to face other than losing her daughter, Amy, to vasculitis. “They call it ‘The Roof of Africa’ but I call it almost to heaven! It’s the closest I’ll be to Amy until […]
Many Outstanding Questions Still Exist for Vasculitis Patients: The Massachusetts General Hospital Rheumatology Vasculitis Program Hopes to Find Some of the Answers
Blog Vasculitis tends to present in a systemic manner, often affecting multiple organ systems. Clinicians should consider a broad differential (possible conditions that share the same symptoms) and think about the entire person—not just at the time of diagnosis but throughout their life as they face periods of remission and relapse. The Massachusetts General Hospital […]