Two Sides of a Kidney
Blog When you’re a nurse and have four kids under the age of seven, feeling tired can be par for the course. But Theresa Caldron’s fatigue wouldn’t go away and was accompanied by a host of other symptoms. Intrinsically, she knew something wasn’t right, and after two years of repeated trips to the doctor’s office, […]
Top Vasculitis-Friendly Travel Tips for the Holidays
Blog Getting ready to travel? Our community of vasculitis warriors shared their top travel tips to help you face your adventures with extra calm and control! Got a long flight or car ride? Wear compression socks. And don’t forget to get up and move every hour. Elevate your legs to help with leg pain in […]
Painting Her Pain: How One Woman Uses Art to Tell Her Vasculitis Story
Blog When Dr. Shanali Perera chose to become a rheumatologist, specializing in vasculitis, she thought she’d chosen oneof the last specialties that looks at the entire body. “I thought I’d be like Sherlock Holmes,” she said, investigating the whole body, finding clues to her patients’ puzzles. She had no idea her curiosity for investigation would […]
12 Things I’m Grateful For Because of Vasculitis
Blog ‘Tis the season of thankfulness. Although life with vasculitis isn’t always easy, we wanted to know: how has this disease impacted you for the better? We reached out to our community and asked them: “Despite vasculitis, or because of it, what are you grateful for?” Here’s what some of you said: Without vasculitis, I […]
Amgen Successfully Completes Acquisition of ChemoCentryx
Blog TAVNEOS® (avacopan), a First-in-Class Medicine for Patients With Severe Active ANCA-Associated Vasculitis, Added to Inflammation Portfolio THOUSAND OAKS, Calif., (Oct. 20, 2022) – Amgen (NASDAQ: AMGN) today announced that it has successfully completed its previously announced acquisition of ChemoCentryx, Inc. (NASDAQ: CCXI), a biopharmaceutical company focused on orally administered therapeutics to treat autoimmune diseases, inflammatory disorders […]
“We Need Each Other” – The Nourishing Power of Friendship in the Vasculitis Community
Blog Suzanne McLaughlin sat, mostly quiet, as others in that week’s Vasculitis Foundation support group took turns sharing their updates and stories. She kept her unassuming presence until the group neared its close and Dana, the facilitator, said, “Suzanne, I love how you listen intently during groups and take notes. And then you drop your […]
Poems from Our Community
Blog “My feeling is that poetry is also a healing process, and when a person tries to write poetry with depth or beauty, they will find themselves guided along paths which will heal them, and this is more important, actually, than any of the poetry they write.” -Robert Bly Recently, twenty-five of our community members […]
VPPRN 6-Month Check-in Forms – Community Dashboard
Blog 6-Month Check-In Forms VPPRN Community Dashboard | January 2023 Take a look below at what we learned from the VPPRN community about FATIGUE, PAIN, FLARES and SYMPTOMS OF VASCULITIS at the January 2023 check-in. What did we learn about FATIGUE and VASCULITIS? We learned that most patients (over 88%) experience some fatigue related to their […]
VF Announces 2023 V-RED Winners
Blog It’s been a year of surprises for our Vasculitis Recognizing Excellence in Diagnosis (V-RED) award program. We have two winners who tied for first place, two winners who received honorable mentions, and this is the first year we’ve had a winner from Germany and Saskatoon, Canada. This is the 10th year that the VF […]
Bestselling Book Series Author Boosts Vasculitis Awareness
Blog How do people become aware of vasculitis? Sometimes it’s a book; sometimes it’s knowing someone who has vasculitis. For Patrick Taylor, MD, New York Times bestselling author of the Irish Country Series books, it was both. In the third book of the Series, An Irish Country Christmas, Mr. Taylor (he dropped his medical title […]