VPPRN Patient-Powered Research
Granulomatosis with Polyangiitis (GPA)
Compared to patients with other forms of vasculitis at the July 2023 check-in, patients with granulomatosis with polyangiitis (GPA) reported similar scores/ratings for fatigue, symptoms of vasculitis, and pain. However, there were differences in the reporting of flares and current status of vasculitis, with patients with GPA reporting fewer flares and a smaller percentage reporting active vasculitis.
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
FLARES and VASCULITIS
Flare Reporting: Patients with GPA reported fewer flares in the past 6 months (17%) compared to 26% in the VPPRN community.
Patients with GPA
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: 13% of patients with GPA reported no fatigue in the past 6 months. This is similar to the 11% reported in the VPPRN community.
Patients with GPA
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: 25% of patients with GPA reported no symptoms of vasculitis. This is similar to the 22% in the VPPRN community.
Patients with GPA
Entire VPPRN Community
PAIN and VASCULITIS
Pain: 84% of patients with GPA reported no to moderate pain (scores 0-5) in the past 6 months. This is similar to the 81% in the VPPRN community who reported these same scores.
Patients with GPA
Entire VPPRN Community
CURRENT STATE OF VASCULITIS
Current State of Vasculitis: 18% of patients with GPA reported their vasculitis as active. This is less than the 24% reported in the Network.