VPPRN Patient-Powered Research
Central Nervous System (CNS) Vasculitis
At the July 2023 check-in, patients with central nervous system vasculitis (CNSV) reported more flares and higher scores for fatigue, symptoms of vasculitis, and pain when compared to patients with other forms of vasculitis. Additionally, a larger percentage of patients with CNSV reported their vasculitis as currently active.
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
FLARES and VASCULITIS
Flare Reporting: Patients with CNSV reported more flares in the past 6 months (32%) compared to 26% in the VPPRN community.
Patients with CNSV
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: 40% of patients with CNSV reported “quite a bit” or “very much” fatigue in the past 6 months. This is higher than the 34% reported from the VPPRN community.
Patients with CNSV
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: Patients with CNSV scored their symptoms of vasculitis higher over the past 28 days. 11% of patients with CNSV reported no symptoms of vasculitis compared to 22% in the VPPRN community.
Patients with CNSV
Entire VPPRN Community
PAIN and VASCULITIS
Pain: Patients with CNSV reported more pain in the past 6 months. 14% patients with CNSV experienced no pain, compared to 27% in the VPPRN community.
Patients with CNSV
Entire VPPRN Community
CURRENT STATE OF VASCULITIS
Current State of Vasculitis: 32% of patients with CNSV reported their vasculitis as active. This is higher than the 24% reported in the Network.
Patients with CNSV
Entire VPPRN Community
