VPPRN Patient-Powered Research
Behçet’s Disease (BD)
Compared to patients with other forms of vasculitis, patients with Behçet’s Disease (BD) reported more flares and higher scores for fatigue, symptoms of vasculitis, and pain at the July 2023 check-in. Additionally, a larger percentage of patients with BD reported their vasculitis as active.
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider. The graphs below reflect the scores/ratings for patients with Behçet’s disease (BD)
FLARES and VASCULITIS
Flare Reporting: Patients with BD reported more flares in the past 6 months (70%) compared to 26% in the VPPRN community.
Patients with Behçet’s disease
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: 55% of patients with BD reported “quite a bit” or “very much” fatigue in the past 6 months. This is higher than the 34% in the VPPRN community.
Patients with Behçet’s disease
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: Patients with BD scored their symptoms of vasculitis higher over the past 28 days. 9% of patients with BD reported no symptoms of vasculitis compared to 22% in the VPPRN community.
Patients with Behçet’s disease
Entire VPPRN Community
PAIN and VASCULITIS
Pain: Patients with BD reported more pain in the past 6 months. 11% of patients with BD reported no pain. This is less than the 27% in the VPPRN community.
Patients with Behçet’s disease
Entire VPPRN Community
CURRENT STATE OF VASCULITIS
Current State of Vasculitis: 62% of patients with BD reported their vasculitis as active. This is higher than the 24% reported in the Network.
Patients with Behçet’s disease
Entire VPPRN Community
