Open Studies

Have you joined the VPPRN?

The VPPRN promotes the advancement of research that provides reliable, useful, and meaningful information to patients with vasculitis and their clinicians.

We maintain an online research registry of patients with all forms of vasculitis providing clinical data about their condition. The type of information collected through the VPPRN portal includes:

data elements relevant to diagnosis
disease extent
medications
demographics
healthcare team
patient‐reported outcomes

VPPRN Study Characteristics

To uphold a standard of scientific excellence that aligns with our commitment to patient‐centered research, a VPPRN study must possess ALL the following characteristics:

ASKS A RESEARCH QUESTION THAT IS IMPORTANT TO PEOPLE AFFECTED BY VASCULITIS (PATIENT-CENTERED)
VPPRN studies must be scientifically meaningful as well as relevant and important to people affected by vasculitis.
INCLUDES SIGNIFICANT PATIENT ENGAGEMENT IN ALL ASPECTS OF THE RESEARCH
“Patient engagement” refers to patients having meaningful participation throughout the research process, from topic selection to design, and conduct, and reporting of research.
UTILIZES VPPRN INFRASTRUCTURE AND RESOURCES
For a study to be considered a VPPRN study, it must use one or more VPPRN resources, including:
- Data from the VPPRN patient registry
- Access to patients identified from the VPPRN patient registry

The VPPRN has successfully performed a wide range of clinical research and is poised to conduct research studies from simple online surveys to large-scale randomized clinical trials. As vasculitis visionaries, the VPPRN has a large collection of research proposals all generated in collaboration with patient-partners. The proposed research ideas are based on four essential criteria:

Scientific merit
Importance to patients
Feasibility within the VPPRN
Fundability

VPPRN Open Studies

Learn about the open VPPRN studies and how you can participate.

VCRC-VPPRN EGPA Registry

Goal: To conduct clinical research and clinical trials to learn more about EGPA with the goal of improving management and treatment of this complex disease.

Who Can Participate? Any patient with a diagnosis of EGPA.

Vasculitis Pregnancy Registry (VPREG)

Goal: The primary objective of this study is to understand pregnancy characteristics and outcomes among women with vasculitis.

Who Can Participate? Patients who are currently pregnant and over 18 years of age.

Closed Studies In Analysis

These VPPRN studies are currently closed for enrollment. The data from these studies is currently under analysis.

Sleep-Vasc: Quality of Sleep in Vasculitis

Goal: Through this study, we hope to learn more about the quality of sleep of patients living with vasculitis.