Revelations: How One Woman is Emerging from her Vasculitis Gloom
Blog When I spoke to Lupe on the phone for the first time, I asked her to describe herself in a few words. Colleagues had already told me about her, calling her “hilarious,” “always uplifting,” and “welcoming.” But when I asked Lupe, who’s been living with granulomatosis polyangiitis (GPA) vasculitis since July 2023, she paused, […]
“We Need Each Other” – The Nourishing Power of Friendship in the Vasculitis Community
Blog Suzanne McLaughlin sat, mostly quiet, as others in that week’s Vasculitis Foundation support group took turns sharing their updates and stories. She kept her unassuming presence until the group neared its close and Dana, the facilitator, said, “Suzanne, I love how you listen intently during groups and take notes. And then you drop your […]
VF Patient Online Support Groups
Blog Vasculitis Patient Engagement and Impact of Online Patient Support Group Meetings Patients living with a rare disease like vasculitis face significant physical and psychosocial challenges. Loneliness is a common feeling among patients with vasculitis and the COVID-19 pandemic has compounded feelings of isolation and loneliness. Online patient support groups are a medium through which […]