Neurologic Involvement in ANCA-Associated Vasculitis (AAV)
Blog Data From Multicenter Longitudinal Observational Study Prof. Rula Hajj-Ali At the 2022 International Vasculitis and ANCA Workshop, Dr. Rula Hajj-Ali presented on the prevalence and outcomes of neurological involvement in ANCA-Associated vasculitis (AAV). The data from Dr. Hajj-Ali’s multicenter longitudinal observational study showed the prevalence and impact of neurologic involvement (NI) in AAV. This […]
VF Patient Online Support Groups
Blog Vasculitis Patient Engagement and Impact of Online Patient Support Group Meetings Patients living with a rare disease like vasculitis face significant physical and psychosocial challenges. Loneliness is a common feeling among patients with vasculitis and the COVID-19 pandemic has compounded feelings of isolation and loneliness. Online patient support groups are a medium through which […]
New Kawasaki Disease Guideline Released by American College of Rheumatology and Vasculitis Foundation
Blog Newswise — ATLANTA — The American College of Rheumatology (ACR), in partnership with the Vasculitis Foundation (VF), released a new guideline for the management of Kawasaki disease that addresses diagnostic issues relating to Kawasaki disease, the treatment of high-risk patients, and the management of convalescent patients. Kawasaki disease is a vasculitis that is most common in […]
The Vasculitis Foundation Announces Exciting New Initiative: Vasculitis-Building Outcomes, Leading Discoveries
Blog The Vasculitis Foundation (VF) is pleased to announce an exciting new initiative: Vasculitis-Building Outcomes, Leading Discoveries (V-BOLD), which combines three of the VF’s most critical programs: Fellowships, Vasculitis Centers, and Research. “The VF continues to transform the landscape for patients with vasculitis and providers taking care of them,” said Anisha B. Dua, MD, MPH, […]
ACR/EULAR Classification Criteria for AAV Released
Blog The American College of Rheumatology (ACR) and European Alliance of Associations for Rheumatology (EULAR) endorsed the ACR/EULAR classification criteria for ANCA-associated vasculitis (EGPA, GPA and MPA). The classification criteria were developed and validated by an international group of medical experts over the past 11+ years through the Diagnostic and Classification Criteria in Vasculitis Study (DCVAS), which enrolled 6,991 patients from 136 international […]
New Handout Provides Family Planning and Birth Control Information
Blog We are excited to introduce the release of our new handout designed for our patients who have questions about family planning and birth control. The two-page handout is intended to offer a reference for patients to use when talking with their health care providers about these important issues. The handout was developed by Megan […]
Chronic Illness: Wegener’s Vasculitis Series with Art Diaz
Blog Formerly called Wegener’s granulomatosis, granulomatosis with polyangiitis (GPA) is a form of vasculitis—a family of rare disorders characterized by inflammation of the blood vessels, which can restrict blood flow and damage vital organs and tissues. It is a rare disease that, like so many others, effects each person differently. In the first episode of […]
The American College of Rheumatology/Vasculitis Foundation Release Three New Guidelines for Treatment of Vasculitis
Blog FOR IMMEDIATE RELEASE July 9, 2021 Media Contact Amanda Head (Corna) acorna@rheumatology.org 404-679-5330 The American College of Rheumatology/Vasculitis Foundation Release Three New Guidelines for Treatment of Vasculitis ATLANTA — The American College of Rheumatology (ACR), in partnership with the Vasculitis Foundation (VF), released three new guidelines for the treatment and management of systemic vasculitis. Vasculitis is a group of about 20 rare diseases […]
ChemoCentryx Announces Filing of Amendment to NDA Submission and Extension of the PDUFA Review Period for Avacopan in the Treatment of ANCA-Associated Vasculitis
Blog ChemoCentryx Announces Filing of Amendment to NDA Submission and Extension of the PDUFA Review Period for Avacopan in the Treatment of ANCA-Associated Vasculitis SAN CARLOS, Calif., July 06, 2021 (GLOBE NEWSWIRE) — ChemoCentryx, Inc., (Nasdaq: CCXI), today announced that, following consultations with the U.S. Food and Drug Administration (FDA), it filed an amendment to […]
VF Awards Research Grant to Pulmonary/Critical Care Medicine Physician at OSU
Blog Lynn A. Fussner, MD, Assistant Professor at The Ohio State University (OSU), Division of Pulmonary, Critical Care, and Sleep Medicine, has been awarded a one-year grant from the Vasculitis Foundation (VF) for her study, “Role of Monocytes and Alpha-1 Antitrypsin in ANCA-Associated Vasculitis.” Dr. Fussner’s goal is to identify better ways of striking a […]