“He died 4 days before his son was born.” Scott & Kelsey’s Vasculitis Story
Blog They never expected it. “Scott passed away four days before he could have met his son,” Kelsey, his wife, told me. “I am reminded every day. It hurts.” For several weeks, he had been sick: cough, body aches, fever, joint pain. Until one night he began coughing up blood and couldn’t catch his breath. […]
Mom’s Determined to Take Back Control Over Daughter’s Vasculitis
Blog “I remember the day Addy was diagnosed with Stage 4 Kidney Disease. At the time, I didn’t know what that meant. I thought it was a death sentence.” It’s been over three years since Jen Wilson’s then-six-year-old daughter, Addison Grace, was told her kidneys were failing and that she had microscopic polyangiitis (MPA) vasculitis. […]
Revelations: How One Woman is Emerging from her Vasculitis Gloom
Blog When I spoke to Lupe on the phone for the first time, I asked her to describe herself in a few words. Colleagues had already told me about her, calling her “hilarious,” “always uplifting,” and “welcoming.” But when I asked Lupe, who’s been living with granulomatosis polyangiitis (GPA) vasculitis since July 2023, she paused, […]
Top Vasculitis-Friendly Travel Tips for the Holidays
Blog Getting ready to travel? Our community of vasculitis warriors shared their top travel tips to help you face your adventures with extra calm and control! Got a long flight or car ride? Wear compression socks. And don’t forget to get up and move every hour. Elevate your legs to help with leg pain in […]
“Fatherhood is My Driving Force.” Greg Patterson’s Vasculitis Story
Blog Greg Patterson, who describes himself as a “weekend warrior long-distance runner,” was in the middle of the Peachtree 10K Road Race in Atlanta, Georgia, last July when he and his two daughters (who were running with him) stopped momentarily to walk. They had been running the race together for about 10 years and knew […]
New Handout Provides Family Planning and Birth Control Information
Blog We are excited to introduce the release of our new handout designed for our patients who have questions about family planning and birth control. The two-page handout is intended to offer a reference for patients to use when talking with their health care providers about these important issues. The handout was developed by Megan […]
Pinochle Night Brings Friends Together During Pandemic
Blog By Fran Crotty My 85 year old mother splits her time between living at her Florida condo in the cool months and her Long Island, New York condo in the warm months. When in Florida, she plays in several bridge games each week. My brothers and sister have always been competitive in sports. I […]