Blog
She Never Imagined Being a Sick Parent
- May 8, 2024
- Pregnancy, Story
- Eosinophilic Granulomatosis with Polyangiitis
![](https://vasc.avallolabs.com/wp-content/uploads/2024/03/D26A2097-C0EB-464F-8730-3108E97C1D78.jpg)
Blog “Do you mind if I just change her nappy?” We were midway through our conversation when Gussie Blake noticed Grace, her 5-month-old daughter whom she had been cooing at throughout our Zoom call, fussing. “Of course not,” I said. Gussie carried on talking as she got up, moving Grace and the phone with her […]
Never-Ending Battle: A Personal Fight for Medical Care
- May 1, 2024
- Story
- Urticarial Vasculitis
![](https://vasc.avallolabs.com/wp-content/uploads/2024/03/crop-E9581044-DA91-450E-ADA1-BCF20957F9FB-copy.jpg)
Blog “Sometimes, I feel like I’m living in an alternate reality, like I’m stuck somewhere on the inside and I’m watching everything else happen outside of me.” When I asked Ruth, who’s living with an alphabet soup of autoimmune diseases, including hypocomplementemic urticarial vasculitis (HUVS), what it’s like living with a chronic illness, her voice […]
“He died 4 days before his son was born.” Scott & Kelsey’s Vasculitis Story
- April 1, 2024
- Family, Story
- Granulomatosis with Polyangiitis
![](https://vasc.avallolabs.com/wp-content/uploads/2024/03/Kelsey_Scott2-copy.jpg)
Blog They never expected it. “Scott passed away four days before he could have met his son,” Kelsey, his wife, told me. “I am reminded every day. It hurts.” For several weeks, he had been sick: cough, body aches, fever, joint pain. Until one night he began coughing up blood and couldn’t catch his breath. […]
Finding a Way Through, Together
- March 20, 2024
- Story
- Granulomatosis with Polyangiitis
![](https://vasc.avallolabs.com/wp-content/uploads/2024/03/Darrin-White.jpg)
Blog Darrin White’s life has meandered. He was born in the Canadian province of Manitoba. His father was in the Canadian Armed Forces, so their family moved a lot—“roughly every 20 months of my childhood,” Darrin said. As an adult, he lived for “a stint” in Ottawa, another stint in Halifax, followed by time in […]
Two Sides of a Kidney
- March 11, 2024
- Story
- General Vasculitis, Granulomatosis with Polyangiitis
![](https://vasc.avallolabs.com/wp-content/uploads/2024/03/Cladron-family.jpg)
Blog When you’re a nurse and have four kids under the age of seven, feeling tired can be par for the course. But Theresa Caldron’s fatigue wouldn’t go away and was accompanied by a host of other symptoms. Intrinsically, she knew something wasn’t right, and after two years of repeated trips to the doctor’s office, […]
Mom’s Determined to Take Back Control Over Daughter’s Vasculitis
- March 1, 2024
- Family, Story
- Microscopic Polyangiitis, Pediatric Vasculitis
![](https://vasc.avallolabs.com/wp-content/uploads/2024/03/Addy_Jen_hospital-958x816-1.jpg)
Blog “I remember the day Addy was diagnosed with Stage 4 Kidney Disease. At the time, I didn’t know what that meant. I thought it was a death sentence.” It’s been over three years since Jen Wilson’s then-six-year-old daughter, Addison Grace, was told her kidneys were failing and that she had microscopic polyangiitis (MPA) vasculitis. […]