Mom’s Determined to Take Back Control Over Daughter’s Vasculitis
Blog “I remember the day Addy was diagnosed with Stage 4 Kidney Disease. At the time, I didn’t know what that meant. I thought it was a death sentence.” It’s been over three years since Jen Wilson’s then-six-year-old daughter, Addison Grace, was told her kidneys were failing and that she had microscopic polyangiitis (MPA) vasculitis. […]
“I Had No Idea If I was Going to Live or Die” – Alex’s Teenage Journey with Vasculitis
Blog Meet Alex, from Fort Mitchell, KY, who’s living with GPA vasculitis: I was diagnosed in June 2018 when I was 16 years old and in between my sophomore and junior years of high school. The challenges I faced with vasculitis were plentiful. I woke up one day being unable to bend my knees without […]
“Will I Ever Feel Normal Again?” How Jenna Lea Faced High School and Vasculitis
Blog “It’s not often in life, especially so early in your life, that you have odd experiences,” Jenna Lea, a rising senior at North Carolina State University, said. “I would call this”–getting diagnosed and living with vasculitis–“an odd experience.” Now, she wants to make the most of it, for herself and the vasculitis community. “I […]
ALERT: Changes Coming to Medicaid and Children’s Health Insurance Program Coverage
Blog Do you or a family member currently have health coverage through Medicaid or the Children’s Health Insurance Program (CHIP)? If so, you may need to take steps to find out if you (or your family member) can continue that coverage after the COVID-19 public health emergency (PHE) ends. Throughout the pandemic, regular Medicaid/CHIP eligibility […]
Meet Dr. Adam Mayer: Fellow Physician in Adult and Pediatric Rheumatology at UPenn
Blog Adam Mayer, MD, discovered his love for rheumatology in his first year of residency after having several meaningful and exciting patient cases with systemic rheumatic diseases. He has always wanted to care for the most complex and critically ill patients and vasculitis was a natural interest. Dr. Mayer began his four-year fellowship at the […]
First Pediatric Rheumatologist Awarded 2021 VCRC-VF Fellowship
Blog Jessica Bloom, MD, MSCS, has been awarded the 2021 Vasculitis Clinical Research Consortium (VCRC)-Vasculitis Foundation (VF) Fellowship. Dr. Bloom is currently an Assistant Professor of Pediatrics at the University of Colorado- Denver, Attending Physician in Pediatric Rheumatology at Children’s Hospital Colorado in Aurora, and the first pediatric rheumatologist in the VCRC-VF Fellowship program. Her […]