Mom’s Determined to Take Back Control Over Daughter’s Vasculitis
Blog “I remember the day Addy was diagnosed with Stage 4 Kidney Disease. At the time, I didn’t know what that meant. I thought it was a death sentence.” It’s been over three years since Jen Wilson’s then-six-year-old daughter, Addison Grace, was told her kidneys were failing and that she had microscopic polyangiitis (MPA) vasculitis. […]
“Will I Ever Feel Normal Again?” How Jenna Lea Faced High School and Vasculitis
Blog “It’s not often in life, especially so early in your life, that you have odd experiences,” Jenna Lea, a rising senior at North Carolina State University, said. “I would call this”–getting diagnosed and living with vasculitis–“an odd experience.” Now, she wants to make the most of it, for herself and the vasculitis community. “I […]
Introducing Our 2020-2021 VCRC-VF Fellow: Kinanah Yaseen, MD
Blog Kinanah Yaseen, MD, was awarded the 2020 Vasculitis Clinical Research Consortium (VCRC)-Vasculitis Foundation (VF) Fellowship. She is currently a junior faculty member in the Department of Rheumatic and Immunologic Diseases at Cleveland Clinic. Her interests involve all forms of vasculitis, especially small vessel vasculitis including granulomatosis with polyangiitis (GPA), microscopic polyangiitis, eosinophilic granulomatosis with […]
Neurologic Involvement in ANCA-Associated Vasculitis (AAV)
Blog Data From Multicenter Longitudinal Observational Study Prof. Rula Hajj-Ali At the 2022 International Vasculitis and ANCA Workshop, Dr. Rula Hajj-Ali presented on the prevalence and outcomes of neurological involvement in ANCA-Associated vasculitis (AAV). The data from Dr. Hajj-Ali’s multicenter longitudinal observational study showed the prevalence and impact of neurologic involvement (NI) in AAV. This […]
ACR/EULAR Classification Criteria for AAV Released
Blog The American College of Rheumatology (ACR) and European Alliance of Associations for Rheumatology (EULAR) endorsed the ACR/EULAR classification criteria for ANCA-associated vasculitis (EGPA, GPA and MPA). The classification criteria were developed and validated by an international group of medical experts over the past 11+ years through the Diagnostic and Classification Criteria in Vasculitis Study (DCVAS), which enrolled 6,991 patients from 136 international […]
The American College of Rheumatology/Vasculitis Foundation Release Three New Guidelines for Treatment of Vasculitis
Blog FOR IMMEDIATE RELEASE July 9, 2021 Media Contact Amanda Head (Corna) acorna@rheumatology.org 404-679-5330 The American College of Rheumatology/Vasculitis Foundation Release Three New Guidelines for Treatment of Vasculitis ATLANTA — The American College of Rheumatology (ACR), in partnership with the Vasculitis Foundation (VF), released three new guidelines for the treatment and management of systemic vasculitis. Vasculitis is a group of about 20 rare diseases […]
VF Welcomes Jocelyn Ashford to the Board of Directors
Blog Jocelyn Ashford wanted to serve on the VF’s Board of Directors because she has always appreciated the thoughtful, collaborative, and practical approach the VF has taken in addressing the needs of the vasculitis community. She feels that the VF is open to trying new approaches, considers new angles, and makes the work fun. “Today, […]