David Massicotte-Azarniouch, MD, Awarded Two-Year Grant Through VF’s Young Investigator’s Award Program
Blog David Massicotte-Azarniouch, MD, Assistant Professor at the University of Ottawa and Associate Scientist at the Ottawa Hospital Research Institute in Ontario, Canada, has been awarded a two-year grant through the Vasculitis Foundation’s Young Investigator’s Award Program. The aim of his study, “Steroid Minimization in ANCA-Associated Vasculitis For Safe Effective Treatment – the SAFE-T project,” […]
ALERT: Changes Coming to Medicaid and Children’s Health Insurance Program Coverage
Blog Do you or a family member currently have health coverage through Medicaid or the Children’s Health Insurance Program (CHIP)? If so, you may need to take steps to find out if you (or your family member) can continue that coverage after the COVID-19 public health emergency (PHE) ends. Throughout the pandemic, regular Medicaid/CHIP eligibility […]
Introducing Our 2022-2023 VCRC-VF Fellow: Gözde Kübra Yardimci, MD
Blog Gözde Kübra Yardimci, MD, began her one-year Vasculitis Clinical Research Consortium (VCRC)-Vasculitis Foundation (VF) Fellowship in July 2022 at Mount Sinai Hospital, University of Toronto, Ontario, Canada. Her main areas of interest at present are severe ischemic events in Takayasu arteritis and Behçet’s syndrome. Through her fellowship, Dr. Yardimci is working under the supervision […]
Introducing Our 2022-2023 VCRC-VF Fellow: Marta Casal Moura, MD, MSc, MSPH
Blog Marta Casal Moura, MD, MSc, MSPH, began her one-year Vasculitis Clinical Research Consortium (VCRC)-Vasculitis Foundation (VF) Fellowship in July 2022. For anti-neutrophil autoantibody (ANCA)-associated vasculitis (AAV), she is studying the predictors of response to plasma exchange in patients who have AAV glomerulonephritis and how histologic scores can predict the response to treatment. For giant […]
GPA Patient’s Advice for Others Facing a Similar Diagnosis: Remain Positive—You Can Beat This
Blog In late summer of 1992, Dan Prozialeck began experiencing chronic congestion, coughing and sinus infections, throat pain, and excruciating joint pain. He had been going to a local urgent care facility for months for the sinus infections and each time he saw the doctor, he was put on a stronger antibiotic and increasing amounts […]
Steroids and Snow Peas: A Tale of Victory Over Vasculitis
Blog “How in God’s Green Earth can YOU be so chipper?” queried a fellow shopper after I assaulted her cerebellum with my litany of GPA/Autoimmune/ Primary Immune Deficiency/Diabetic/Tracheal Stenotic/Neurotic High Dose Steroid Syndrome/Tracheostomy Reliant/Rituxan Receiving/Anemic diagnosis. I’m the President of the “But You Don’t LOOK Sick!” Club, and am in training for World’s Hot Mess […]
Introducing Our 2023-2024 VCRC-VF Fellow: Roger Yang, MD
Blog Roger Yang, MD, began his Vasculitis Clinical Research Consortium (VCRC)-Vasculitis Foundation (VF) Fellowship in September 2022. Dr. Yang’s training through the Penn Vasculitis Center at the University of Pennsylvania will focus on both clinical care of patients with all forms of vasculitis and research on the diseases. As vasculitis may affect blood vessels of […]
Brett Hack Vasculitis Charities: Raising Awareness of This Rare Disease
Blog In 2012 Terry Hack’s son, Brett, had a grand mal seizure that came out of the blue. Several tests were done but there was no diagnosis. He was placed on anti-seizure medication for over a year, and 14 months after his first seizure he developed a severe headache, sinus infection and numbness in his […]
Florida Kidney Physicians Glomerulonephritis Center of Excellence Now Accepting Patients
Blog Vasculitis patients are complex. Different forms of the disease may share similar symptoms and treatment courses; however, each disease is distinct. This requires dedicated specialists who will go the extra mile, working cohesively for their patients. The specialists at the Florida Kidney Physicians Glomerulonephritis Center of Excellence in Boca Raton provide comprehensive care for […]
University of Michigan’s Vasculitis Program: Hoping to Impact Individual Patients and the Approach to the Diseases
Blog The University of Michigan (U-M) Vasculitis Program began in September 2021 with a soft launch. “We started simply by instituting a dedicated vasculitis clinic and have been moving forward step by step,” said Ora Singer, MD, MS, Director of U-M’s Vasculitis Program. Both Dr. Singer and her colleague Julia Ford, MD, the Associate Program […]