“What If Vasculitis Stops Me From Becoming a Mother?”
Blog Samantha SainteMarie was in graduate school, working to get her master’s degree in mental health counseling, when it first happened. She was typing a research paper and noticed that her legs and feet had swollen. By the time the swelling went down, purpura–purple patches on her skin–were all over. “It looked like a port […]
Top Vasculitis-Friendly Travel Tips for the Holidays
Blog Getting ready to travel? Our community of vasculitis warriors shared their top travel tips to help you face your adventures with extra calm and control! Got a long flight or car ride? Wear compression socks. And don’t forget to get up and move every hour. Elevate your legs to help with leg pain in […]
Painting Her Pain: How One Woman Uses Art to Tell Her Vasculitis Story
Blog When Dr. Shanali Perera chose to become a rheumatologist, specializing in vasculitis, she thought she’d chosen oneof the last specialties that looks at the entire body. “I thought I’d be like Sherlock Holmes,” she said, investigating the whole body, finding clues to her patients’ puzzles. She had no idea her curiosity for investigation would […]
12 Things I’m Grateful For Because of Vasculitis
Blog ‘Tis the season of thankfulness. Although life with vasculitis isn’t always easy, we wanted to know: how has this disease impacted you for the better? We reached out to our community and asked them: “Despite vasculitis, or because of it, what are you grateful for?” Here’s what some of you said: Without vasculitis, I […]
Amgen Successfully Completes Acquisition of ChemoCentryx
Blog TAVNEOS® (avacopan), a First-in-Class Medicine for Patients With Severe Active ANCA-Associated Vasculitis, Added to Inflammation Portfolio THOUSAND OAKS, Calif., (Oct. 20, 2022) – Amgen (NASDAQ: AMGN) today announced that it has successfully completed its previously announced acquisition of ChemoCentryx, Inc. (NASDAQ: CCXI), a biopharmaceutical company focused on orally administered therapeutics to treat autoimmune diseases, inflammatory disorders […]
US FDA approves Regeneron-Sanofi’s Kevzara to treat polymyalgia rheumatica
Blog The US Food and Drug Administration (FDA) has granted approval for Regeneron Pharmaceuticals and Sanofi’s Kevzara (sarilumab) to treat polymyalgia rheumatica (PMR) in adult patients. Kevzara has been approved as the first and only biologic indicated for PMR adult patients who did not respond to corticosteroids or who cannot tolerate corticosteroid taper. Developed using […]
“We Need Each Other” – The Nourishing Power of Friendship in the Vasculitis Community
Blog Suzanne McLaughlin sat, mostly quiet, as others in that week’s Vasculitis Foundation support group took turns sharing their updates and stories. She kept her unassuming presence until the group neared its close and Dana, the facilitator, said, “Suzanne, I love how you listen intently during groups and take notes. And then you drop your […]
Fasenra met the primary endpoint in the MANDARA Phase III trial in eosinophilic granulomatosis with polyangiitis (EGPA)
Blog First head-to-head trial of biologics in EGPA, comparing a single monthly injection of Fasenra to three injections per month of mepolizumab Positive high-level results from the MANDARA Phase III trial showed AstraZeneca’s Fasenra (benralizumab) met the primary endpoint of the trial and demonstrated non-inferior rates of remission compared to mepolizumab in patients with eosinophilic […]
The Right Doctor Changes Everything
Blog For five years, doctors told Stephanie there was nothing wrong with her. Her bloodwork was inconclusive. In her hospital records, doctors dismissed her as “psychosomatic.” But her pain and fatigue kept getting worse. At one point, she was bed-bound for seven months until one doctor, assuming her symptoms were auto-immune related, finally started her […]
Poems from Our Community
Blog “My feeling is that poetry is also a healing process, and when a person tries to write poetry with depth or beauty, they will find themselves guided along paths which will heal them, and this is more important, actually, than any of the poetry they write.” -Robert Bly Recently, twenty-five of our community members […]