VPPRN Patient-Powered Research – OPTIONS Study
Options and Preferences for Treatments Informing recOmmendatioNS Study (OPTIONS Vasculitis)
Vasculitis researchers seeks to understand how patients with ANCA Associated vasculitis make choices about treatment options they may be offered.
This study is a survey designed to address the question of how patients with AAV weigh the benefits and harms of plasma exchange (PLEX). We will analyze how varying the baseline risk of End Stage Kidney Disease (ESKD) and serious infection influence the decision to pursue PLEX in AAV.
Hear Why Other Patients Are Participating
My name is Paul and like you, I am a patient with vasculitis involved in vasculitis research. I have been a member of the VPPRN since its launch in 2014 and have served as a patient partner in the governance of the VPPRN. I am currently the lead patient-partner for the OPTIONS study and I’m personally asking you to join in helping researchers and healthcare providers understand patient values and preferences about plasma exchange in ANCA associated vasculitis. About 15 minutes of your time to complete this survey will make a big impact, so join me today and participate in the OPTIONS study.
OPTIONS Lead Patient-Partner, Paul Brown
Recruitment for this Study is Closed
About the VPPRN OPTIONS Study
This study is a survey designed to address the question of how patients with AAV weigh the benefits and harms of plasma exchange (PLEX). We will examine how varying the baseline risk of End Stage Kidney Disease (ESKD) and serious infection influence the decision to pursue PLEX in AAV.
Any patient with a diagnosis of ANCA-Associated Vasculitis (AAV) such as granulomatosis with polyangiitis (GPA), microscopic polyangiitis (MPA), eosinophilic granulomatosis with polyangiits (EGPA) and are members of the VPPRN.
A short survey that will take approximately 15 minutes to complete.
What should I know about a research study?
- Whether or not you take part is up to you.
- You can choose not to take part.
- You can agree to take part and later change your mind.
- Your decision will not be held against you.
- You can ask all the questions you want before you decide.
Please note, our research team is here to make participation in this study easy for you. The study coordinator is available for you to contact if you have any questions or concerns. Contact the Study Team at support@vpprn.org if you have questions about the study.
Not a Member of the VPPRN?
If you aren’t a member of the Vasculitis Patient-Powered Research Network (VPPRN), we invite you to join today!
We want to understand your individual patient experience. We will learn about individual patient experiences by collecting data you provide. We’ve made it easy for you to contribute this data to make vasculitis research happen now.
Questions? Please contact Christine Yeung, the VPPRN Network Manager at christine.yeung@pennmedicine.upenn.edu.
Interested in Other Research Opportunities?
The goal of the VPPRN research program is to conduct high-quality studies that will improve the care and the health of patients with vasculitis by exploring research questions that matter most to patients and advance medical knowledge about vasculitis. Learn about current opportunities to participate in research.